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Welcome to the
Sickle Cell Disease
Association of America

The Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

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Data & Statistics

300,000

Babies born internationally each year with SCD

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1 in 13

Black Americans have sickle cell trait (SCT)

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100,000

People in the United States have Sickle Cell Disease (SCD)

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1 in 365

Black Americans have sickle cell disease (SCD)

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Find A Chapter Near You:

  • National Program Initiatives

  • SCD C.A.R.E.S. Consortium

    The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them. The Sickle Cell […]

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  • Advocacy

    Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance policies that will maximize the quality of life

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  • CHW Training

    If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and

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  • Sickle Cell News

  • CMMI Announces the Cell and Gene Therapy Access Model

    Today, the Centers for Medicare and Medicaid Innovation (CMMI) announced the launch of their new Cell and Gene Therapy Access Model, a demonstration aimed at improving access to cell and [...]
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  • Midterm Election Outcomes and What they Mean for SCD

    An update from John Otsuki, SCDAA government relations manager As I am sure you’re aware, the United States recently completed a midterm election. All members of the House of Representatives [...]
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  • Sickle Cell Disease is Not a Joke

    This weekend’s Saturday Night Live skit about the recent historic approvals of potentially curative gene therapies for sickle cell disease is distasteful at best and harmful at worst. Earlier this [...]
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  • June 19, 2023, is Officially Sickle Cell Awareness Day..

    Maryland Governor Wes Moore has signed a proclamation to make June 19, 2023, Sickle Cell Awareness Day! This recognition goes a…

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