Welcome to the
Sickle Cell Disease
Association of America

The Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

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Data & Statistics

300,000

Babies born internationally each year with SCD

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1 in 13

Black Americans have sickle cell trait (SCT)

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100,000

People in the United States have Sickle Cell Disease (SCD)

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1 in 365

Black Americans have sickle cell disease (SCD)

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Find A Chapter Near You:

  • National Program Initiatives
  • SCD C.A.R.E.S. Consortium

    The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them. The Sickle Cell […]

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  • Advocacy

    Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance policies that will maximize the quality of life

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  • CHW Training

    If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and

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  • Sickle Cell News
  • SCDAA Statement: CMS Cell and Gene Therapy Access Model

    Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell disease. The Sickle Cell Disease Association of America Inc. [...]
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  • OCTOBER LEGISLATIVE BRIEFING

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  • JUNE LEGISLATIVE BRIEFING

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  • MARCH LEGISLATIVE BRIEFING

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