SCDDA

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(800) 421-8453
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info@sicklecelldisease.org
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Welcome to the
Sickle Cell Disease
Association of America

The Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

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Data & Statistics

300,000

Babies born internationally each year with SCD

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1 in 13

Black Americans have sickle cell trait (SCT)

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100,000

People in the United States have Sickle Cell Disease (SCD)

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1 in 365

Black Americans have sickle cell disease (SCD)

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National Program Initiatives
SCD C.A.R.E.S. Consortium

The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them. The Sickle Cell […]
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Advocacy

Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance policies that will maximize the quality of life
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CHW Training

If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and
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Sickle Cell News
SCDAA Statement: CMS Cell and Gene Therapy Access Model

Nearly one year ago, the Food and Drug Administration (FDA) approved two new gene therapies for the treatment of sickle cell disease. The Sickle Cell Disease Association of America Inc.

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OCTOBER LEGISLATIVE BRIEFING

The Senate and the House of Representatives recently introduced resolutions expressing support for the designation of September 2024 as Sickle Cell Disease Awareness Month. In the Senate, the resolution was led by Senators Tim Scott (R-SC) and Cory Booker (D-NJ) along with 10 bipartisan Senators.

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JUNE LEGISLATIVE BRIEFING

SCDAA’s in-person Advocacy Days were a huge success! On May 8 and 9, representatives from 13 SCDAA member organizations across 11 different states traveled to Washington, D.C., to meet with members of Congress and their staff to talk about issues impacting the SCD community.

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MARCH LEGISLATIVE BRIEFING

For those who have registered to participate in SCDAA’s Advocacy Day, which will be in person in Washington, DC, May 8-9, 2024, we thank you. We are excited to have you join us as we walk the halls to talk with federal legislators about issues important to the SCD community.

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(800) 421-8453

info@sicklecelldisease.org

SCDAA Member

Clinical Trial Finder

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Welcome to the
Sickle Cell Disease
Association of America

Data & Statistics

300,000

1 in 13

100,000

1 in 365

Find A Chapter Near You:

SCD C.A.R.E.S. Consortium

Advocacy

CHW Training

SCDAA Statement: CMS Cell and Gene Therapy Access Model

OCTOBER LEGISLATIVE BRIEFING

JUNE LEGISLATIVE BRIEFING

MARCH LEGISLATIVE BRIEFING

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Welcome to the Sickle Cell Disease Association of America

Data & Statistics

300,000

1 in 13

100,000

1 in 365

Find A Chapter Near You:

SCD C.A.R.E.S. Consortium

Advocacy

CHW Training

SCDAA Statement: CMS Cell and Gene Therapy Access Model

OCTOBER LEGISLATIVE BRIEFING

JUNE LEGISLATIVE BRIEFING

MARCH LEGISLATIVE BRIEFING

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Welcome to the
Sickle Cell Disease
Association of America