SCDAA

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(800) 421-8453
Email:

info@sicklecelldisease.org
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Welcome to the
Sickle Cell Disease
Association of America

The Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

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Data & Statistics

300,000

Babies born internationally each year with SCD

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1 in 13

Black Americans have sickle cell trait (SCT)

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100,000

People in the United States have Sickle Cell Disease (SCD)

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1 in 365

Black Americans have sickle cell disease (SCD)

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National Program Initiatives
SCD C.A.R.E.S. Consortium

The mission of this initiative is to raise awareness about the importance of clinical trials and why it’s beneficial for sickle cell warriors to participate in them. The Sickle Cell […]
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Advocacy

Sickle Cell Disease Association of America, Inc. (SCDAA) actively works with legislators and regulators at both the state and federal levels to advance policies that will maximize the quality of life
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CHW Training

If you have a passion for community health or you have been personally affected by SCD, SCDAA encourages you to apply for community health worker (CHW) training. Our program offers comprehensive online self-paced skills training and
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Sickle Cell News
Black History Month: Our Current Member Organizations

As Black History Month ends, we would like to look to the future for our final #SCDHistoryHighlight at the amazing work organizations across the country are doing to create a safer environment for our community......

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Black History Month: National Sickle Cell Anemia Control Act

After our founding, one of SCDAA’s earliest goals was to ensure the National Sickle Cell Anemia Control Act of 1972 was passed. With our early member organizations in tow, Dr. Whitten and the association began.....

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Black History Month: Our Early Member Organizations

Last week, we learned about the origins of the Sickle Cell Disease Association of America, Inc. (SCDAA) and the vision for a national coordinated approach to addressing sickle cell disease. This week, our #SCDHistoryHighlight draws.....

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Black History Month 2025: Dr. Charles F. Whitten

Our first #SCDHistoryHighlight for Black History Month brings attention to the life and work of SCDAA co-founder Dr. Charles F. Whitten. Dr. Whitten was a pediatric hematologist whose dedication to supporting the health of sickle.....

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(800) 421-8453

info@sicklecelldisease.org

SCDAA Member

Clinical Trial Finder

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Welcome to the
Sickle Cell Disease
Association of America

Data & Statistics

300,000

1 in 13

100,000

1 in 365

Find A Chapter Near You:

SCD C.A.R.E.S. Consortium

Advocacy

CHW Training

Black History Month: Our Current Member Organizations

Black History Month: National Sickle Cell Anemia Control Act

Black History Month: Our Early Member Organizations

Black History Month 2025: Dr. Charles F. Whitten

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Advocating. Educating. Raising Awareness.

Welcome to the Sickle Cell Disease Association of America

Data & Statistics

300,000

1 in 13

100,000

1 in 365

Find A Chapter Near You:

SCD C.A.R.E.S. Consortium

Advocacy

CHW Training

Black History Month: Our Current Member Organizations

Black History Month: National Sickle Cell Anemia Control Act

Black History Month: Our Early Member Organizations

Black History Month 2025: Dr. Charles F. Whitten

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Advocating.
Educating.
Raising Awareness.

Welcome to the
Sickle Cell Disease
Association of America