Advocacy Day is an opportunity for patients and caregivers affected by sickle cell disease to learn how to advocate for issues that are important to them. Participants learn about the key legislative issues that are important to individuals living with SCD and their families, including promoting stable funding for research, better health care access and increased education and awareness for the sickle cell community throughout the country. Stay tuned for more details.

2023 National SCD Policy Forum

The first-ever National SCD Policy Forum was held on March 21 and 22, 2023! Sickle cell advocates from across the country came together for this two-day federal advocacy event hosted by the Sickle Cell Disease Association of America (SCDAA), Sick Cells and the Sickle Cell Community Consortium.

Thanks to the amazing advocates who joined us on March 22, this Virtual Hill Day resulted in over 100 advocates sharing their stories, 148 meetings on the Hill and 29 states represented. These advocates asked for increased funding for the HRSA Sickle Cell Disease Treatment Demonstration and the CDC SCD Data Collection Program. They also requested that offices co-sponsor the Sickle Cell Disease Comprehensive Care Act.

Read the 2023 National SCD Policy Forum Report.