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The 51st Annual National Convention was held October 11-14, 2023 at the Crystal Gateway Marriot in Arlington, Virginia.
SCDAA’s Annual National Convention fosters the exchange of the latest scientific and clinical information through innovative training seminars and educational workshops, interactive panel discussion, advocacy lectures and special events. Click here to check out photos from the event!
Sign in to the attendee hub to download the agenda, recordings and more.
Rise Up Campaign: Raising The Bar On Patient Involvement In Clinical Development: Golie L. Green, Blaze Eppinger, Charles Jonassaint, Mia Robinson, Wally Smith, Teonna Woolford, Janie Davis, Abdulafeez Oluyadi, Ahmar Zaidi, Holly John, Dominique Friend
Edit-301 Shows Promising Preliminary Safety And Efficacy Results In The Phase I/Ii Clinical Trial (Ruby) Of Patients With Severe Sickle Cell Disease Using Highly Specific And Efficient Ascas12a Enzyme: Rabi Hanna, Haydar Frangoul, Christopher McKinney, Luis Pineiro, Markus Mapara, Kai-Hsin Chang, Michael Jaskolka, Keunpyo Kim, Maha Wally, Olubunmi Afonja, Adebayo Lawal, Mark C. Walters
Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: Alyssa Schlenz, Shannon Phillips, Shannon D’Alton, Mary Johnson, Julie Kanter
Use Of Newborn Screening Action (Act) Sheets To Increase Referral Of Patients With Hemoglobinopathy Trait For Genetic Counseling By Primary Care Providers: Jillian Chance, Joan M. Lappe, Lindsey C. Leyden, Lori M. Rubarth
Early Identification of Chronic Pain in Children with Sickle Cell Disease: A Quality Improvement Initiative: Alicia Chang, Rachel Guess, Tyler Badding
Medicaid Access and Coverage Advocacy Centering the Patient Voice: Mariah Scott, Emma Andelson, Maggie Jalowsky
Cost Feasibility Modeling Of Ride-sharing Program For An Adolescent Transition Program: Ryan Cooper, Lewis Hsu, Jocelyn Mallard, Ronisha Edwards – Elliott, Elizabeth Ford
Priority Topic: Dealing with Grief in Sickle Cell Disease: Elodie Ontala