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Statement from SCDAA MARAC
February 16, 2021 - We are aware of the announcement today from bluebird bio regarding the temporary suspension of the clinical trials of its LentiGlobin Gene Therapy for Sickle Cell [...]
SCDAA Celebrates Black History Month 2021
Sickle cell disease plays an important role in black history, and vice versa. This month, we will highlight African American sickle cell pioneers to learn more about our community's history. [...]
SCDAA promotes Kevin Amado Jr.
Sickle Cell Disease Association of America promoted Kevin Amado Jr. to community impact and engagement manager. Amado joined the association last year with 16 years of experience as a health [...]
MARAC Advisory Statement: COVID-19 Vaccines
Download the MARAC Alert | Download Spanish Translation | Download French Translation December 14, 2020 - News is evolving rapidly about COVID-19 and COVID-19 vaccines. Early results from the COVID-19 [...]
Sickle Cell Disease Association of America and Aruvant Sciences Forge New Partnership to Educate Around Gene Therapy
The Sickle Cell Disease Association of America (SCDAA) and Aruvant Sciences are proud to announce a new partnership to create educational programs to increase awareness of gene therapy as a [...]
Sickle Cell Disease Association holds 48th annual national convention virtually
Sickle Cell Disease Association of America will hold its 48th annual national convention virtually this year from Tuesday, Oct. 13, through Saturday, Oct. 17. The four-day multidisciplinary convention addressing sickle [...]
Sickle Cell Disease Association of America Partners with HealthWell Foundation
New Fund Launches to Provide Financial Assistance to People with Sickle Cell Disease Copayment and Premium Assistance Now Available (April 15, 2020 – Hanover, MD) - The Sickle Cell Disease [...]
NEW – Sickle Cell Disease and COVID-19: Provider Advisory
Download Provider Advisory Download Sub-Saharan African Provider Advisory An Outline to Decrease Burden and Minimize Morbidity This document will be updated as data and evidence emerge. May 27, 2020 - [...]
NEW – Health Alert for People with Sickle Cell Disease and their Caregivers
DOWNLOAD PATIENT PDF (Spanish Version) DOWNLOAD PATIENT SUB-SAHARAN AFRICAN PDF SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP YOU. This document will be updated as more information [...]
ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies
Joint FDA/ASH Led Initiative Highlights Importance of Using Patient Reported Outcomes and Biomarkers in Clinical Trials to Advance SCD Therapies (WASHINGTON, DC, Dec. 6, 2019) — The American Society of [...]