SCDAA Statement About Gene Therapy Approval
On Dec. 8, 2023, the Food and Drug Administration (FDA) approved two cell-based gene therapies for sickle cell disease (SCD), Casgevy from CRISPR/Vertex and Lyfgenia from bluebird bio. These are [...]
Gene Therapy is Approved!
We are very excited to share that today, Dec. 8, the Food and Drug Administration approved two gene therapies to treat sickle cell disease! These potentially curative therapies are the [...]
Exa-cel Gene Therapy is Approved!
Art by Hertz Nazaire Today, Dec. 8, the Food and Drug Administration approved exa-cel gene therapy for sickle cell disease, making it the first treatment of its kind available to [...]
Exa-cel: What You Need to Know
Exa-cel gene therapy was recently approved by the Food and Drug Administration to treat sickle cell disease. You probably have questions about this new treatment option. Read more below. Is [...]
SCDAA Statement on Exa-cel Approval
On Dec. 8, 2023, the Food and Drug Administration (FDA) approved exagamglogene autotemcel (exa-cel) gene therapy for sickle cell disease (SCD), making it the first treatment of its kind available [...]
SCDAA Statement on Exa-cel Gene Therapy
On October 31, 2023, the Food and Drug Administration is poised to make a landmark decision about exagamglogene autotemcel (exa-cel) gene therapy for sickle cell disease. The Sickle Cell Disease [...]
CDC SCD Pregnancy Fact Sheets
Learn more about how to stay healthy leading up to, during and after a pregnancy with these newly developed fact sheets from the Centers for Disease Control and Prevention (CDC), [...]
In Memory of Dr. Lennette Benjamin
The Sickle Cell Disease Association of America, Inc., (SCDAA) is saddened to hear the news of the passing of Dr. Lennette Benjamin. Dr. Benjamin was a trailblazing physician who made [...]
CMO Speaks: Making ED Care Better for SCD – Progress in 2023
Welcome to CMO Speaks, a blog featuring the voices of SCDAA’s clinical leadership team. This article was written by Dr. Lewis Hsu, SCDAA's chief medical officer. The Emergency Department is [...]
New Opiate Dosing Calculator for Health Care Providers
NEW RESOURCE AVAILABLE: This tool from the National Alliance of Sickle Cell Centers can help sickle cell providers make important decisions about dosage when prescribing opiates. The calculator was developed [...]