Urge Officials to Cosponsor the SCD Comprehensive Care Act

Dear Sickle Cell Community, Over the past several months, SCDAA has been working with congressional sickle cell disease (SCD) champions and other community and provider groups to advance bipartisan legislation [...]

August 24, 2022

The Passing of Dr. Samir Ballas

SCDAA regrets to announce that Dr. Samir Ballas passed away on August 12. He was devoted to caring for adults with sickle cell in Philadelphia at Thomas Jefferson University. He [...]

August 19, 2022

MARAC Advisory Statement: Monkeypox

July 20 - The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee (MARAC) is aware of the news about monkeypox and is monitoring the situation. Please follow [...]

July 20, 2022

Memorial Service for Dr. Kwaku Ohene-Frempong

Dr. Kwaku Ohene-Frempong, a visionary sickle cell doctor and advocate, passed away on May 7, 2022, at 76. A memorial service to honor his life has been planned for Saturday, [...]

June 22, 2022

Sickle Cell Care Expansion Act Introduced to the Senate

Ahead of World Sickle Cell Awareness Day on June 19, U.S. Senators Chris Van Hollen (D-Md.) and Cory Booker (D-N.J.) introduced the Sickle Cell Care Expansion Act to improve access [...]

June 22, 2022

SCDAA Joins the Newly Formed Sickle Cell Disease Partnership

Partnership Calls on Policymakers to Implement Proposals in 2020 Landmark Report Today, in recognition of World Sickle Cell Day on June 19th, the Sickle Cell Disease Association of America announced [...]

June 20, 2022

SCDAA names chief financial officer

The Sickle Cell Disease Association of America named Reginald Hart Jr. as chief financial officer. Hart brings more than 20 years of experience in executive leadership, business management, strategic planning, [...]

June 15, 2022

SCDAA Releases Comments on the CDC’s Opioid Guidelines

The Centers for Disease Control and Prevention (CDC) recently drafted an update to its guidelines for prescribing opioids and reached out to SCDAA for feedback. After decades of misinformation, poor [...]

May 16, 2022

In Memory of Dr. Kwaku Ohene-Frempong

We are devastated to learn of the death of Dr. Kwaku Ohene-Frempong on Saturday, May 7, 2022. Dr. Ohene-Frempong was a true leader in the sickle cell community and dedicated [...]

May 10, 2022

SCDAA recognized for leadership

The Sickle Cell Disease Association of America received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders. The annual award honors organizations that serve members with [...]

May 6, 2022

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