Sickle Cell Disease Association of America partnered with the Sickle Cell Community Consortium to advocate for legislation benefiting people with sickle cell disease and their families. The partnership includes collaboration on the association’s annual advocacy day initiatives, meetings and trainings and in developing federal legislative priorities.
“Sickle Cell Disease Association of America and the Sickle Cell Community Consortium share the same mission of improving the lives of people with sickle cell disease,” said Beverley Francis-Gibson, president and CEO of the Sickle Cell Disease Association. “We’re excited to work with the consortium, which brings a range of organizations, advocates and advisers that will help us achieve our legislative goals together.”
A nonprofit formed in 2014, the Sickle Cell Community Consortium consists of sickle cell community organizations, patient and caregiver advocates, community partners and medical and research advisers working together to represent people with sickle cell disease. The consortium identifies and implements strategies and partnerships to address needs in the sickle cell community.
Sickle Cell Disease Association of America’s annual advocacy day, supported by the partnership between the association and consortium, generates public awareness of sickle cell disease and kickstarts momentum to push for legislative reform. The day provides training, resources and guidance to participants interested in advocacy work.