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Sickle Cell 101
- Complications
- General Knowledge
- How Living with SCD Affects…(Pain Management-Nutrition-College-Care-etc.)
- Access to Quality and Affordable Care
- Being an Athlete Living with Sickle Cell Disease
- College Bound with SCD
- Complications
- Finding a Provider (Medical Home)
- Hospital Care
- Military Members & Veterans with SCD
- Nutrition
- Pain Management
- Traveling with SCD
- Treatment Options
- Working with SCD
Patient living with SCD (Health Resources)
- Adolescent
- Adult
- Child
- A Parents Guide for the School Aged Child_English.pdf
- A Parents Guide for the School Aged Child_Spanish.pdf
- A Parents Guide to Sickle Cell Disease.pdf
- Planning School Accommodations and Modifications guide.pdf
- Qualifying for Social Security Disability with Sickle Cell Disease.pdf
- SCD Nurse Donna Me (pdf).pdf
- Sickle Cell Family Guide_Fourth Edition.pdf
- Sickle Cell factsheet for a school nurse.pdf
- The Bear Necessities of Sickle Cell coloring book.pdf
- Your Young Child and Sickle Cell Disease.pdf
- brochure-child-print.pdf
- Geriatrics
- Infant
- Mental and Behavioral Health
- Substance Abuse
- Support
- Transitioning to Adulthood
- Differences-in-Care.pdf
- Differences-in-Care_SPANISH.pdf
- Generation S Transition Booklet.pdf
- Health Care Privacy at Age 18 - FINAL.pdf
- Health Care and Career Transition QuickGuide_508.pdf
- Healthcare-Transition.pdf
- Healthcare-Transition_Spanish.pdf
- How-Well-Do-You-Know-Your-Health-Care-Needs.pdf
- How-Well-Do-You-Know-Your-Health-Care-Needs_SPANISH.pdf
- Pediatric Vs Adult Care v11.pdf
- SCD - Transition Family HCT TOOLKIT.pdf
- TEEN-CHECKLIST.pdf
- TEEN-CHECKLIST_Spanish.pdf
- Transition-Timeline.pdf
- Transition-to-Adulthood-Parents-Caregivers.pdf
- Transition-to-Adulthood-Parents-Caregivers_Spanish.pdf
- Turning-18 Spanish FINAL.pdf
- health-smart-transition-booklet.pdf
Provider (MD/DO/DDS/Clinical Psychologist/Clinical Psychiatrist/Nurses)
Non-Medical Providers (CHWS/Health Navigators/Social Workers)
Caretaker (Parent/Teacher/Daycare Provider/etc.)
- Daycare-Summer Camp provider servicing a patient with SCD
- Family Member of a Patient with SCD
- Games for patients with SCD
- Steps to Better Health for People with Sickle Cell Disease Toolkit
- DS-18231 SCD and Pediatric Stroke infographic.pdf
- SCD and Pediatric Stroke infographic 1.jpg
- SCD and Pediatric Stroke infographic 2.jpg
- sickle-cell-3-tips-safe-med-use-h.pdf
- sickle-cell-blood-clots-h.pdf
- sickle-cell-caring-for-common-complications-h.pdf
- sickle-cell-heart-health-h.pdf
- sickle-cell-kidney-health-h.pdf
- sickle-cell-lung-health-h.pdf
- Teacher serving a student with SCD
Research (Data and News in the SCD Community)
- Data and News in the SCD Community
- Current challenges in the mgmt of patients with SCD - Italian experience.pdf
- Oshsner Journal_Sickle Cell Disease_Advances in Treatment.pdf
- QA Dr. Tisdale 4-6-19(FINAL).docx
- SCDFactSheets-Finalflyers.pdf
- SickleCellDiseaseAnnual Data Reports&Facts_Jan2020.pdf
- What is the Cure Sickle Cell Initiative (CureSCi)_.mp4
- Genetic Counselling .txt
- SCD Access to Care White Paper-SCDAA .pdf
SCD Patient Resources (Mentoring/Advocacy/SCDAA Initiatives)
P.O.W.E.R. ECHO Project
- CBO Session - How to Successfully Manage a Newborn Screening Program_11_16_2020.mp4
- Cultural Humility.mp4
- Documenting Eligible Support Services.mp4
- HQI ECHO.mp4
- How Do We Approach Racism In The Care of Our Clients.mp4
- Impacts of Covid on CHWs.mp4
- Managing a Nonprofit for Sickle Cell Disease patients.mp4
- Mental & Behavioral Health Issues.mp4
- Nutrition & SCD.mp4
- Retaining CHWs.mp4
- Session CHWs, SCD patients, & Hospital Relationships.mp4
- Staying Motivated & Encouraged.mp4
- Telehealth101.mp4
- Undocumented Individuals With Sickle Cell Disease.mp4